This morning I woke up and I read this amazing article. I knew that I needed to dive into our story, again. I instantly felt that others might need to know why I share our story (even if I know why I share our story). Too many people might feel that this is unnecessary, and it might be uncomfortable for them to read these posts – often with raw emotions and vulnerable hearts. Others might even feel like this is invasive. We’re opening the door into our private lives to share some of the experiences that we’ve had with you, my sweet miracle child. But to not share these, would be detrimental to our growth as people and as a family, and it would perhaps halt the impact we might make on other people going through something similar.
What I want other people to know, from the moment that they dig into our conversations here, is that you DO have a label! And I’m okay with that. But, what I didn’t realize until last night, was that you don’t know you have a label. It made me really quite sad to see your confused little face as I explained an outburst to your big brother. I knew in that moment, you weren’t prepared to listen, but one day very soon you will be. Listen, my sweet girl. Mama is about to tell you all about your label. The label that describes your quirks and disposition. The quirks and disposition that make you, you.
Let’s pause here. Some people might think that’s a great thing! That you, my wild child, have no idea that you have sensory processing disorder, or that you are most likely on the spectrum. But to me that means you don’t know who you are. And sweetheart, I will give everything I’ve got for you to know and accept the kind of different that you are. You are wild; you are funny; you are fantastically smart; you have the most interesting perspective on the world. You amaze me every single day… even as I dress you because you can’t quite do that without prompting; even as I feed you when we are on a timeline, because I know otherwise you’ll get distracted; even as I remind you to use the toilet, because I know that again there might be too many other sensations going on for you to process, and you won’t recognize the sense of urgency. You are amazing, even though I jokingly refer to you as my tiny Alzheimer’s patient. (Because let’s be honest, even though you’re amazing, you take work.)
But it’s harder for you. And that is why I shout out your label(s) to the masses! It’s so much harder for you – and you should know that. Not because it’s a place for you to grow weary and complacent and weak, but because you need to know that you are a force to be reckoned with. Every day you face unseen battles that typical kids don’t face. I watch someone like Dr. Temple Grandin and her accomplishments, and I think YES. The obstacles you are navigating will allow for you to make a far greater impact on the world than I can.
Labeling allows for you to know – and one day soon process – how very strong you are, my sassy girl. And labeling allows others to “see” you. So often the world runs about without focus. When we share your label, we give them somewhere to set their sights on. Expectations change, and understanding begins.
So, I’ll end my ramblings here. I want you to know that you are different, because different equals powerful. I want others to know you are different, because all types of different have a place in our world. If we were all the same, no one would step outside of normal. Spectacular change comes from life outside of normal; and the greatest contributions that we can make come from being different! And you my sweet baby girl you are so different.
Have you heard yet, baby girl? You. Are. Different. And praise God for that.
“We have different gifts, according to the grace given to each of us. If your gift is prophesying, then prophesy in accordance with your faith; if it is serving, then serve; if it is teaching, then teach; if it is to encourage, then give encouragement; if it is giving, then give generously; if it is to lead, do it diligently; if it is to show mercy, do it cheerfully.”
– Romans 12:6-8 NIV